Episodes

WEBINAR 2: [FR] Un Pas en Arrière, Deux Pas en Avant
Feb. 19, 2025

WEBINAR 2: [FR] Un Pas en Arrière, Deux Pas en Avant

Le webinaire de la Société canadienne de l'hémophilie a abordé la thérapie génique pour les hémophiles. Dr. Jean St. Louis a expliqué les différences entre les injections de facteurs et la thérapie génique, en utilisant des vecteurs AAV pour introduire des gènes dans les cellules du foie. Il a déta…
WEBINAR 2: [EN] Hemophilia Gene Therapy: One Step Back, Two Steps Forward
Dec. 17, 2024

WEBINAR 2: [EN] Hemophilia Gene Therapy: One Step Back, Two Steps Forward

The Canadian Hemophilia Society's December 4, 2024 webinar on hemophilia gene therapy featured the latest research and access updates. Dr. Roy Khalifé described how AAV vector gene therapy works in hemophilia A and B. He reported the latest clinical trial results for of Roctavian (hemophilia A) and…
DEBATE: If gene therapy for hemophilia B were available in Canada tomorrow, would you want to receive it?
June 5, 2024

DEBATE: If gene therapy for hemophilia B were available in Canada tomorrow, would you want to receive it?

In this podcast, Elizabeth Vansant, Mark Pervan, Murray Milne and Mathieu Jackson, all individuals with severe hemophilia B, are asked to debate the question: “If gene therapy for hemophilia B were available in Canada tomorrow, would you want to receive it?” See Privacy Policy at https://art19.com…
DEBATE: If gene therapy for hemophilia A were available in Canada tomorrow, Would you want to receive it?
March 28, 2024

DEBATE: If gene therapy for hemophilia A were available in Canada tomorrow, Would you want to receive it?

In this podcast, Cleaven Pagani, Rick Waines, Paul Wilton and Emil Wijnker, all with severe hemophilia A and also members of the Canadian Hemophilia Society Blood Safety and Supply Committee, are asked to debate the question: “If gene therapy for hemophilia A were available in Canada tomorrow, woul…
What Other Approaches To Hemophilia Gene Therapies Are Down The Road?
Dec. 18, 2023

What Other Approaches To Hemophilia Gene Therapies Are Down The Road?

The first generation of gene therapy for hemophilia, called gene insertion or gene addition, is now a reality, but it is not for everyone. Dr. Glenn Pierce explores other approaches to gene therapy in the research pipeline that in the future may be more efficacious for a longer time for more people…
How Might Gene Therapy Be Delivered In Canada?
Dec. 14, 2023

How Might Gene Therapy Be Delivered In Canada?

In this podcast, Dr. Jerry Teitel explores how gene therapy for hemophilia A and hemophilia B might be delivered to patients across Canada in an equitable way, even though the administration will occur in only some sites. He describes the follow-up that is required in the critical months following …
How Might Gene Therapy Be Funded In Canada?
Dec. 12, 2023

How Might Gene Therapy Be Funded In Canada?

Gene therapy—a high-cost, one-time, potentially life-changing treatment—presents unique challenges for governments that make decisions on funding innovative treatments. Dr. Durhane Wong-Rieger presents creative ideas on new ways to think about how gene therapy for hemophilia A and B could be funded…
What Is The Shared Decision-Making Process In Hemophilia Gene Therapy?
Dec. 7, 2023

What Is The Shared Decision-Making Process In Hemophilia Gene Therapy?

In this podcast, Dr. Jerry Teitel describes the process of shared decision-making prior to gene therapy in hemophilia A and hemophilia B, and how the nature of gene therapy itself makes shared decision-making so important. Dr. Teitel is a Professor of Medicine at the University of Toronto, and Medi…
What Don’t We Know About Gene Therapy For Hemophilia?
Dec. 5, 2023

What Don’t We Know About Gene Therapy For Hemophilia?

In this podcast, Dr. Glenn Pierce explores what we know we don’t know and what we don’t even know we don’t know about the brand-new treatment which is gene therapy for hemophilia A and B. Glenn is a long-time researcher in coagulation products for hemophilia and is currently the Medical Vice Presid…
What Is It Like To Receive Gene Therapy?
Dec. 1, 2023

What Is It Like To Receive Gene Therapy?

In this podcast, Brian O’Mahony explores the patient experience of gene therapy for hemophilia, from the shared decision-making process prior to gene therapy, to the administration itself, to the intense follow-up in the firs...
What Are The Clinical Trial Results In Hemophilia Gene Therapy?
Nov. 30, 2023

What Are The Clinical Trial Results In Hemophilia Gene Therapy?

In this podcast, Dr. David Lillicrap presents the results of clinical trials in hemophilia A and hemophilia B gene therapy. He describes how high factor VIII and IX levels can rise, how predictable this response is from person to person, and how long the therapy may be effective. Dr. Lillicrap is a…
Who Is Eligible For Hemophilia Gene Therapy?
Nov. 17, 2023

Who Is Eligible For Hemophilia Gene Therapy?

In this podcast, Brian O’Mahony explores why gene therapy for hemophilia A and Hemophilia B is not for all patients. He describes what makes a person eligible, and in some cases ineligible, to receive the treatment. Brian is Chief Executive Officer of the Irish Haemophilia Society and a former pres…
What Is Gene Therapy For Hemophilia?
Nov. 16, 2023

What Is Gene Therapy For Hemophilia?

In this podcast, Dr. David Lillicrap describes in easy-to-understand language what gene therapy for hemophilia A and hemophilia B is, how it is administered and how it works. Dr. Lillicrap is a Professor in the Department of Pathology and Molecular Medicine at Queen’s University in Kingston, Ontari…
Introducing: Gene Therapy for Hemophilia: Dream or Reality?
Nov. 15, 2023

Introducing: Gene Therapy for Hemophilia: Dream or Reality?

This is a series of podcasts featuring well-known patient and physician experts will provide important answers, for example: What are the clinical trial results in hemophilia GT? What is the shared decision-making process in hemophilia GT? What is it like to receive it? What other approaches to hem…